Friday, July 23, 2010

An update

I've had a good couple of days, very busy, but I've had time to stop today and yesterday too, which was much needed as I'm in for a busy weekend too.

I took Billy-Joe for his x-ray this morning and then I headed out to the Plaza to buy birthday gifts for him and Julia. I got Billy-Joe the Wii Monster Tri game, which he's been wanting for ages, and I know Mickey will enjoy it too. I bought Julia a gorgeous pair of silver ear rings with a purple hearts made of a stone inside them, they're just gorgeous and purple is her favourite colour. I didn't want to buy her jewellery seeing as she works in a jewellery store and her Dad sells the stuff, but I know she'll treasure it, and let's face it, a girl can never have too much jewellery!!! I bought myself jammies from Myer that were on special. I can't stand the BigW pjs anymore, and the Myer ones are always understated and just really nice. They were 40% off which was great, as they're a bit dearer than what I like to spend.

We went to the accountant on Wednesday, we'll both get good refunds and I"m sweating on my Centrelink refund, because I seriously underestimated our earnings. My CCs are both sick, so they'll get paid out again and my rego will be paid for 12 months. I'm hoping I'm left with enough to buy my Thermomix. I'll be able to claim the iPad on my tax, but I'm still on the fence with that one. We want to get Billy-Joe a new bed and chest of drawers, so we might go and have a look on Sunday.

Tonight I'm going scrapping and I'm looking forward to it. It's my night to debrief with Barbi, she's like a balm for my soul. Tonight there'll only be her and I at the table, so we can hash out a few things about the store, which will be good. I'm feeling guilty because the site isn't going as well as we'd like, but we're going to meet up with a business mentor to see what direction we'll take with it, plus it's what I'm using while I'm doing my e-commerce course. Barbi is happy for me to use Daisy's as a sample. I've done a few things to make the site better already as far as Google is concerned. There's traffic on it every single day which is fantastic, we just want to increase that though. The Facebook fan page is growing too, slowly but surely, there's over 90 people on it now which is fabulous.

Not much else to report, I've got a few thoughts running around in my Labyrinth of a mind, but I've run out of time.....until next time.


Tuesday, July 20, 2010

Week 1 Term 3

Well we're back into the swing of things. It feels like the holidays were forever away now. We're already looking forward to Rainbow Beach in October, not really that far away. That's a real holiday, no work, no huge list of chores, just relaxing and enjoying each other's company.
I've had a busy week. I feel like I'm doing so much on the web site, but I spend too much time, not knowing what I'm doing rather than being productive. I've still got more work to do this week, including my lesson work.
Ah well, I'm glad this app saves my work, because it's now Week 2 and I'd forgotten to upload this. Last week I took the kids to the GP, as a follow up visit from the Asthma Nurse. Both Sammy and Billy-Joe had to have blood tests and x-rays. Yesterday I got a call from the medical centre to bring Billy-Joe back, obviously something had shown up on the blood test. I thought this was a step in the right direction, because he's always coughing, so I thought we'd get a script for antibiotics.
Billy-Joe came back positive on his ANCA test. This test coming back positive can be a false positive, which is what I'm praying for. The GP is concerned he may have Churg-Strauss Syndrome.
There are some main symptoms which Billy-Joe doesn't present with, namely red nodules, and an allergic rhinitis. But, the fact he's in the 3rd percentile for his weight is not good. He's been underweight for most of his life. He also has bi-lateral knee pain, which as I know from suffering pain in both achilles and both hips, bilateral pain, is a sign of something systemic rather than an injury. The GP told me not to panic, and I'm not panicking, but my heart sank when I read about this syndrome. It's a rare disease, an inflammation of the blood vessels, but has stages, the first two stages can be managed with heavy duty corticosteroids, while the third stage can lead to death. The research on this syndrome is fairly limited as it's so rare, and often people aren't diagnosed until later in life, this disease in children is even more rare.
The rest of the day has passed by in a bit of a numb blur. I feel positive and am not worried at this stage, well not devastatingly worried, but yes, I'm concerned. We will take him to have a chest x-ray and then he'll see a paediatrician down the track. Billy-Joe is fine with all this, he's not asked me the name of what the GP suggested, which is good as I don't want him looking it up. 

Perhaps my anti depressants help to numb things a bit, I'm not sure. I won't panic, I'll hand this over to God, and deal with what comes, and pray like hell in the meantime that the GP is irrevocably wrong!!

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